Useful links

There are many charities providing help and information for people affected by dementia.

National organisations

Alzheimer's Society
Offers advice and support for people with all forms of dementia and their families and carers.

Alzheimer's Scotland
Provides services and campaigns in Scotland to help people with dementia and their families and carers.

Dementia Research Centre
The Dementia Research Centre (DRC), based at the National Hospital for Neurology and Neurosurgery (NHNN) is one of the UK's leading centres for clinical research into dementia.

Dementia UK
An initiative to promote and develop Admiral nursing - a specialist nursing intervention focused on meeting the needs of carers and supporters of people with dementia.

Help the Aged aka AgeUK
Help the Aged campaigns for change in government policy, undertakes research into the needs of older people and provides local services in communities across the UK and overseas.

Parkinson's Disease Society
Some people with Parkinson's do develop dementia.  The Society offers information, advice and support for people with Parkinson's and their families.

A National Charity providing housing and care for older people throughout the UK offering specialist care for those living with dementia and their families.

Dementia research

Alzheimer's Research Forum
A US website that reports on the latest scientific findings in Alzheimer's research.

Alzheimer's Research UK
The AR Network promotes collaboration between the UK's top centres for dementia research.

Dementias and Neurodegenerative Diseases Research Network (DenDRoN)
Facilitates the conduct of randomised prospective trials and other well-designed studies of dementia including those for prevention, diagnosis and treatment.

International Journal of Epidemiology
Publishes the latest advances in this area of research which studies populations to find out about disease patterns and risk factors.

Journal of Alzheimer's disease
Publishes international results from research into the causes, disease progression, distribution, genetics, behaviour, treatment and psychology of Alzheimer's.

Stirling University Dementia Services Development Centre
Our staff of academics, health and social care professionals, researchers and event organisers provide comprehensive dementia education and training, consultancy and research services.

Wales Dementias and Neurodegenerative Diseases Research Network (NEURODEM Cymru)
Aiming to develop a close mutually beneficial collaboration between research, health and social care.

Related resources

Airports - Flying with dementia: Why the UK needs dementia friendly airports.

Association of Medical Research Charities
The Alzheimer's Research Trust is a member of this organisation which represents the UK's leading charities that fund medical research.

BBC News online health news and BBC Radio 4
Are useful resources for up-to-the-minute health news and a search facility to help you find out about the latest advances in Alzheimer's / Dementia research.

Papworth Trust
Kerry Farm situated in the stunning Welsh countryside offers supported breaks for families and friends of all ages.  Our team of family coaches are available during the day to support with activities and also offer coaching sessions around dealing with dementia.

Brain Skills
Provides information on keeping your mind active and how the brain works and develops.

Dementia Adventure
Offers holiday breaks and adventure for dementia sufferers and their carers.

Provides comprehensive information on all charities in England and Wales.

Much Loved
This is a tribute website, where people can set up memorial pages for friends and loved ones who have passed away.  The Alzheimer's Research Trust is a Much Loved partner.

National Institute for Health and Clinical Excellence (NICE)
Provides national guidance on promoting good health and preventing and treating ill health.  Publishes guidance on the appropriate treatment and care of people with Alzheimer's disease.

The Good Care Group - Award winning providers of live in care.

Care at Home Ltd - Another provider of care in your own home.  Recently rated 'Good' by the Care Quality Commission.

The Mede - Guest House
This is a guesthouse that offers holidays for people suffering from dementia, along with their carer.

Stairlifts Reviews is a useful site if you are considering implementing a stairlift and for making stairs in general safer.

See also this excellent resource for aids and self help ideas.

Organisations who can provide expert advice on the provision of care in the UK

General Organisations

Care Quality Commission - 03000 616161

Counselling Directory
This website is a support network of UK counsellors and psychotherapists, with information on their training and experience, areas of counselling, fees and contact details. This service is free, confidential and easy to use.

Non-UK web sites / organisations

Alzheimers Speaks is an American based site trying to do a similiar thing to us.  You may find something of interest there to you.

Expertise is an American web site and whilst a lot of the information is based on legal, finacial, etc., situations as they pertain to the US, there is plenty of general information that none Americans would fine very useful.

Tuck is another American based site.  Never the less, the information is equally useful this side of the pond.  This one deals with the problems of sleep disorders and Dementia.

Non-dementia specific sites with useful information

Note that these sites are not necessarily UK based but the information available may still be useful / relevant.

Elderly Care Guide  If you are new to caring for someone, this is a useful guide to get you started and point you in the right directions to get your questions / needs dealt with.

Household quotes and other information.  Do not be misled by the name of this site.  It contains a wealth of information that is not only disability related but also on how to avoid being ripped-off when carrying out any renovation and alteration work.

Transportation Resources for Older Adults

Selling a Home with Modifications for Older Adults

Fall Prevention

Assistive Technology Buying Guide

Home Organization for Newly Disabled Seniors

Business Ideas For People With Disabilities.  This is yet another American based web site but the information may stimulate ideas for people in their own locations.

100+ Resources, Tips, and Discounts on Mobility and Accessibility Products for Seniors and the Disabled  This is another site which will be of most use to our American readers but others may find useful information. is a site run by The National Council For Home Safety and Security in America and contains useful information on personal alarm systems.

Members Login:

Stop Press:

NHS Dental Fines Scandal

An NHS automated system has been incorrectly fining people with dementia.  Read the full article here on the BBC News website.

Barnstaple Link Rotary Club

The club is launching a new project to help people with dementia which will complement the activities of Barnstaple's Memory Café.  Read more...

MHA launch Joyce's Music Video

MHA have launched Joyce's music video on YouTube showing the power of music therapy in helping people with dementia.

Dementia Friendly Communities

Various bodies, both government and others are promoting the setting up of dementia friendly communities.  To see what's involved and how you can be part of it, go to our dementia friendly communities page.  You can also read this PDF document (1.5MB)

Service Above Self

It is with much pleasure that we announce that the Chair of REPoD, Dr. Geri Parlby, has been awarded the 'Rotary International Service above Self Award' for her outstanding contributions to the REPoD effort over the 6 years since its inception.  We feel that all who know her will feel that this award was well deserved.

Hands across the water

The REPoD message is spreading and not just within the UK.  Read this email extract from a couple in Washington DC.

Dementia Adventure

Looking for a break / holiday for someone you care for or yourself - then take a look at this web site.

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